Prader-Willi California Foundation

Nonprofits

About

Prader-Willi California Foundation in downtown San Diego's Bankers Hill district has advocated for individuals with Prader-Willi syndrome as a 501(c)(3) (EIN 95-3480752) since 1979, operating as an affiliate of the national Prader-Willi Syndrome Association USA. The foundation coordinates IEP advocacy, Regional Center navigation, and medical-crisis phone support for more than 800 member families across California, connecting them to the same county-wide referral infrastructure maintained by 211 San Diego. In-service school trainings — built around the foundation's DVD Understanding the Student with Prader-Willi Syndrome, Strategies for Success — prepare teachers and district staff to write IEPs that accommodate the syndrome's behavioral and metabolic demands. The foundation funds multidisciplinary clinics that place PWS-specialized endocrinologists, geneticists, and behavioral therapists in hospital settings for coordinated patient evaluations. Families navigating special-education disputes can pair the foundation's IEP-advocacy support with pro bono representation through the San Diego Volunteer Lawyer Program, which handles education-rights cases from its downtown office. The foundation's highest-touch program funds the only PWS-exclusive residential camp in California — a medically monitored mountain facility that accommodates the dietary supervision and behavioral protocols standard PWS care requires.

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